Here is an awareness video that I recently made. My husband wrote the song for Makenna and we decided to make a video out of it. I hope you enjoy it!
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Welcome to Mended Little Hearts, Central CA blog
Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope. Our group is located in Fresno, CA. To find another Mended Little Hearts group you can go to www.mendedlittlehearts.org
This blog is used to post information about our upcoming meetings, fundraisers and other fun information. This group is open to all heart parents in Central CA no matter which hospital they use. We look forward to staying connected to friends new and old.
This blog is used to post information about our upcoming meetings, fundraisers and other fun information. This group is open to all heart parents in Central CA no matter which hospital they use. We look forward to staying connected to friends new and old.
About Me
- Mended Little Hearts, Visalia
- We are a parent to parent support group for families who have a child with congenital heart defects. We offer support, educational meetings and fun get togethers for parents and kids.
3 comments:
Carlie,
What a wonderful video. That was such a beutiful song I was in tears the entire time.
I wanted to introduce myself. My name is Vanessa and I have a 13-month old daughter, Arianna, who was born with a CHD. I live in Tucson, AZ and when I found out my daughter had a CHD I turned online to try and find a support group. To my surprise there wasn't one. We went through my daughters surgery and felt so alone during that time. Since her surgery I have been wanting to start my own support group and have tryed to find organizations that would help. I contacted the Children's Heart Foundation but found out it wasn't a support group and they are not even up and running in my town anyways. I reached out to the AHA a few months ago to get my face out there and let them know if anyone called wanting to get in contact with a family dealing with CHD's to give them my number. Since then they have called to have my daughter put in a local magazine to get CHD awareness out there, and on Jan. 17th I will be speaking at a breakfast event for local companies to hopefully get them involved in the upcoming Heart Walk. The local AHA in my town asked if I ever contacted Mended Hearts and I informed them that there is not a Mended Little Hearts in town. I have blown this off for awhile because I'm not sure if I can do this. I don't even know where to begin, what to do, how to get the word out there. I am not big on public speaking but my heart is really wanting to get some kind of support group established. I don't want another family to go through what we went through alone. After reading your blog and watching the video it has become evident that I truely want to get involved and I am thinking Mended Little Hearts is the way to go. I was wondering how long you have been involved and how did you get started? Any pointers on what to do, who to contact? And let me know what I'm really in for if I do start this journey. I am sorry for writing a novel I just really wanted get in touch with a support group and get some advice.
I am proud to be your first comment!
Take Care
What a wonderful video! I'm so glad there are more resources available now than when my son was born 21 years ago! I found my way, but it would have been easier with an established group in place!
Keep up the good work!
Oh my goodness, that song was beautiful. By any chance do you sell cd's? I would love to buy one.
My daughter is 5 months old and has Tetralogy of Fallot. She will be having open heart surgery in May.
Love the video and the song!
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