Here is an awareness video that I recently made. My husband wrote the song for Makenna and we decided to make a video out of it. I hope you enjoy it!
Thursday, December 20, 2007
Wednesday, December 19, 2007
CHD Awareness Day 2008
The kiddo CHD'ers (and a few siblings) with the Adult CHD'ers
Getting ready for the balloon release
If you live in Central CA, what would you like to do for this years CHD Day? We are taking suggestions on what other heart families would like to do. Last year we had the Adult Congenital Heart Association come and speak and we had a little party and balloon release. Would you like to do something similar this year. Would you like a speaker, if so who? Would you like to do a party at the church? Would you like to meet somewhere fun, if so where? This is your group and we would love to have your input. Please leave a comment and let us know how you'd like to spend this CHD Day :-)
Getting ready for the balloon release
If you live in Central CA, what would you like to do for this years CHD Day? We are taking suggestions on what other heart families would like to do. Last year we had the Adult Congenital Heart Association come and speak and we had a little party and balloon release. Would you like to do something similar this year. Would you like a speaker, if so who? Would you like to do a party at the church? Would you like to meet somewhere fun, if so where? This is your group and we would love to have your input. Please leave a comment and let us know how you'd like to spend this CHD Day :-)
Sunday, December 16, 2007
CHD Awareness week resolution
Here is a post from a fellow heart mom:
Hi, We are once again trying to get Congress to pass a National CHD Awareness week resolution. My Congressman, Representative Robert Andrews (NJ) has introduced House Resolution 858, "Supporting the goals and ideals of the National Congenital Heart Defect Awareness Week". You can read the resolution here:http://www.govtrack .us/congress/ bill...bill= hr110-858 Please contact your representatives and ask them to sign on to H.Res 858 as co-sponsors and we'll get this resolution passed this year! To contact your representatives, start here: http://www.house. gov Enter your zipcode into "Find your Representative" at the top left. Once you've done that, go to their official website (a link will be on the page) and send them an email message asking them to support H.Res 858. Feel free to pass this on and ask your friends and family to help and post on your pages. The more the better. Thanks, Lyn Justin 19 TGA,VSD,PS www.caringbridge. org/nj/justinw
Hi, We are once again trying to get Congress to pass a National CHD Awareness week resolution. My Congressman, Representative Robert Andrews (NJ) has introduced House Resolution 858, "Supporting the goals and ideals of the National Congenital Heart Defect Awareness Week". You can read the resolution here:http://www.govtrack .us/congress/ bill...bill= hr110-858 Please contact your representatives and ask them to sign on to H.Res 858 as co-sponsors and we'll get this resolution passed this year! To contact your representatives, start here: http://www.house. gov Enter your zipcode into "Find your Representative" at the top left. Once you've done that, go to their official website (a link will be on the page) and send them an email message asking them to support H.Res 858. Feel free to pass this on and ask your friends and family to help and post on your pages. The more the better. Thanks, Lyn Justin 19 TGA,VSD,PS www.caringbridge. org/nj/justinw
Sunday, December 9, 2007
A Chance to Give Back
Here is a note from Sara Tanz:
Hi there everyone! Chloe's Brownie Troop is holding a donation drive to benefit Children's Hospital Central California. We are collecting new and used VHS movies and DVDs to donate to the hospital video library. We will be collecting donations thru Feb. 5th, 2008. Then the girls will take them to the hospital for a small ceremony. We are asking for no rated R movies, but all others are fine. Anyone that wishes to donate movies can either call me 593-1861 or send them to me or take them to:
Pack & Ship Pros
497 N. Clovis Ave #202
Clovis,Ca. 93611
My Mom is expecting that people will be dropping off movies at her store. WE really appreciate everyone's help.
This drive is so important to us since many of our girls have been treated by Children's Hospital or have a loved one who has. Aiden has used the videos in the video library many times and I wanted to help them get a larger selection for kids to choose from. Thanks again! Sara & Chloe
Welcome to Mended Little Hearts, Central CA blog
Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope. Our group is located in Fresno, CA. To find another Mended Little Hearts group you can go to www.mendedlittlehearts.org
This blog is used to post information about our upcoming meetings, fundraisers and other fun information. This group is open to all heart parents in Central CA no matter which hospital they use. We look forward to staying connected to friends new and old. For more informatoin about MLH of Fresno you can contact Carlie at mom2macandzach@sbcglobal.net, call (559) 734-7876 or leave a comment on this blog.
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